Stony Brook University Hospital [PFAC]
"Having lost 14 very close people over the course of 24 months, Susan Capurso realized that our culture needed to do better when it came to death and dying. Finding strength, determination and focus to help others in tier own fearful and overwhelming experiences, Susan became a Certified End of Life Doula and Legacy Specialist. Susan joined PFAC to help individuals and their families to share their voice and to help ensure the best possible experience and outcome when confronted with a life challenging situation."
"After spending time advocating for his father-in-law, a surgical patient at Stony Brook, Dan saw firsthand the importance of a positive relationship between patients, family members and the hospital staff. He found that having an advocate was essential to helping his father-in-law's condition to improve and to regain his health. Dan joined the PFAC in 2019 because he wanted to contribute to improving the quality of care at Stony Brook, with a focus on better communication between patients, families and the hospital staff.
"Spending part of every day for 11 weeks visiting her mother in the ICU, Lori experienced multiple communication breakdowns and frustrations with hospital protocols, procedures, and even staff. She felt that some of these situations could have been avoided, or at least minimized, and wanted to put her attention back on her mother's care. Also wanting to spare other families from facing similar experiences when focusing on a loved one's health, she sought out patient advocacy to voice her concerns and her desire and willingness to be part of a change in the right direction. Coincidentally, a newly re-formed PFAC was in the works, and was the motivation she needed to become a proud member of the ongoing effort to make a difference and to coordinate real, effective changes for patients and families.