What is TriNetX?
Real World Data for Clinical Research
TriNetX (TNX) is a research network combining Stony Brook’s Electronic Medical Record data with the data of up to 60 other Health Provider Networks. Researchers can use TNX to query either Stony Brook’s data alone, or in combination with other provider data via the Health Research or COVID-19 Research Networks.
To learn more about TNX, visit What is TriNetX?
How do I access TriNetX?
How do I use TriNetX?
To begin your TNX training, view the documentation section of this site for Tip Sheets and other helpful resources. Log in to TNX and you may access the online webinars. These videos and more are available by clicking the question mark “?” in the upper right of your TNX screen. The “Training Center” hosts video tutorials. Visit the TNX FAQs section for great instruction on building a query, using analytics, datasets, and more. You may also check for any upcoming SBM live and recorded trainings at https://stonybrookmedicine.edu/TriNetX/training
How far back does the data go?
Stony Brook’s TriNetX data goes back to 01 January 2014. The data from the other institutions typically goes back 7 years, but some go back as far as 13 years.
Can data be exported out of TriNetX? I want to have a dataset for my query.
De-identified datasets can be exported out of the TriNetX tool by Stony Brook TriNetX support. If you are interested in getting data from a cohort in TriNetX, please click “Request Dataset” within your study, and an email will be sent to SBM internal TNX support. Please be sure to name your study and the queries for the datasets you request. Stony Brook-only data can be retrieved by SBM internal TNX support, and can be received typically within 3 days. Datasets from the larger Research Network will be requested from TNX by SBM internal TNX support, and will take at least one week to receive.
Patients in your cohort may be identified by SBM internal TNX support (Honest Broker) with the proper IRB approvals. See the documentation section of this site for a template HIPAA Waiver of Authorization for the use of TNX for recruitment. Note that we cannot then link the patient identifications to your de-identified dataset. However, with IRB approval, you can use those patient MRNs to request data from SBM IT or do chart reviews.
What data is searchable?
Our overview page on TriNetX includes a list of data available through the TriNetX platform, as well a list of data that is not available.
How does TriNetX determine age within the tool?
Age is determined by the patient’s date of birth. It is not related to the diagnosis, procedures, etc., that are selected within the query.
How often is data refreshed in TriNetX?
Our Stony Brook data is refreshed twice a week. Keep that in mind when creating your queries. Your data may be as fresh as one day, or up to 4 days old.
Am I able to use the data and/or screenshots in grant proposals?
Yes, you are allowed to use any of the information you find in this tool.
What are the list of current institutions that are in the whole TriNetX network?
TriNetX is not currently providing a full list of institutions that are in their network for privacy reasons.
I want to do COVID-19 research. Any tips?
To see tips about querying the new COVID-19 Research Network launched in April 2020, visit COVID-19 Query Guidelines.